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Day 27 of #dwarfismawarenessmonth

Medically my condition is defined as Osteogenesis Imperfecta(OI).

Loosely it means my bones were not properly formed.

There are different cases of it and variants such as osteopetrosis the one i think I may actually have. ( page Dr.Ashar🀣🀣🀣)

Part of my type of Dwarfism is getting recurrent fractures.

My bones are like glass, they break easily and don’t unite.

And this is why I use a wheelchair.

As a child I had to miss out on physical play time because the few times I tried , I would get a fracture almost every single time.

My siblings dreaded playing with me, it was VERY hard on me as a child because they feared to break my bones accidentally.

All that loneliness.😒😭

I have had so many fractures and I have forgotten the exact number but they are so many that it no longer freaks me out or my family that much when I get a new fracture.

I can call Aminah and ask her to buy some groceries and in the same breath I ask her to meet me in the ER!!πŸ€·πŸΌβ€β™€οΈ

I have literally broken almost every bone including the back and the skull.πŸ˜…

I have had surgeries to correct the fractures but with no success yet.πŸ™†πŸ½β€β™€οΈ

So I move around with broken bones,literally!!😳😱

(Yeah, I can be dramatic 🀣🀣🀣🀣)

I need to go in for surgery every few years for maintenance of the plating and screws that are fixed to give me some mobility and less pain.

Some of the surgeries have however brought on more disability than before!!πŸ’”

I used to live in the emergency room back in the day but things have gotten better with time.πŸ™πŸ˜Š

My ONLY problem now is the weight that makes a terrible situation worse!!

This has always been our disease , something that bonded us.

My two LP aunties , my brother Mate , and I. The only difference is that he gets them just as frequent if not more frequently ( guy is too active, NEVER sits down🀣🀣🀣) but he heals within the usual 12 weeks.πŸ€·πŸΌβ€β™€οΈ

My aunties too, used to get them as much but would heal.

I am therefore on my own on this one.πŸ˜”πŸ˜’

My doctors have failed to figure out why the non union occurs!

Alhamdulillah I have accepted this and I make do with what I have!

You might assume my life is sad, far from it!!

I live a simple happy life!!😊

Well, maybe not so simple🀣🀣🀣

The Quran says” No soul shall be burden beyond what it can bear”.

The Bible too, says something similar.

God got me, I trust in HIm and He is the best of Planners.

Alhamdulillah for absolutely everything!πŸ˜Šβ€οΈπŸ™

#Glassbones #Medicalmyster

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